Skip to main content

Catherine Update

Since starting Catherine on her reduced calorie diet a week ago, we have seen her progress sort of plateau. This is not a bad thing, but it's what I expected. When she was hungry, she ate more. When she's not so hungry, she eats less. Makes sense to me, I think she's pretty smart! A couple of things to take note of though...

The other night, she crawled up to me and signed "eat", so I brought her into the kitchen and put some cheerios in front of her and she put about 2-3 in there at once! Total she had around 4-5 cheerios. This is huge. She knows what the sign means and used it appropriately!

Today I sat down with her and ate a snack. She grabbed a Veggie Stick from me and tasted it...still doesn't like them. So, I finished the bag for her. She did eat a cheerio I offered her. Up until this point, when I say that Catherine "ate" something, it means that she put some food in her mouth (or let me) and let it sit between her tongue and her bottom teeth. She lets it sit there until it dissolves or it dribbles out (sorry if this is too much info...). But today she was actually moving that cheerio around and it was gone in less than a minute! I was excited! I know she has the skills to eat, but I know it will take some time for everything to come together.

She has actually gained back a pound of the weight she lost during the big drop in calories since being on the reduced calorie diet. (Don't want to be her! ha!) Seriously though, I always thought she was overfed. Maybe she doesn't need to have the 850 cal/day she was getting before. It will be very interesting to see what her weight is next week at the doctor's and what he will want to do. I honestly don't think a whole lot of progress is going to happen unless she's hungrier than she is now, but we can't keep her on very little calories for a long time. We are still considering Kluge Institute in VA.

For those of you who don't know, Kluge is a rehabilitation center for children that has a tube weaning program. It's a 2 week intensive day program that is hunger based, meaning they let the kids get hungry so they have an internal motivation to eat. There are also therapies geared to each child to help address any other issues that come into play. It's very gentle and there is no force feeding. Believe it or not, some places do that. They have quite a bit of experience doing this and a pretty good success rate. I think their main objective for a child Catherine's age would be to get the weaning process started and have it continue at home. If we decide to go this route and she is approved, it would happen sometime this summer, as there is a waiting list.

Thank you all for your prayers. We pray for all of you!

Comments

Popular posts from this blog

2016 Rosary-A-Day Giveaway

That's right!  For the month of October we will be giving away one of our handcrafted cord knot rosaries each day during the month of October, the month of the Rosary.

For your chance to win, simply send an email to (webmaster@realliferosary.com) with the words "Rosary-A-Day" in the subject line.  Each day we'll randomly pick a name to win a free "surprise me" (our choice of colors) rosary.  We'll also be giving away some copies of Rosary Meditations for Real Life throughout the month from those names submitted.  Make sure to not be selfish, share the love and let others know!  Good luck!

One winner per household.  Please enter only once, you will receive an email confirming your entry.  Multiple entries from one email address will be deleted. Any order through our site will qualify you for a second entry. Your email will stay in until you win or until the end of the month.  US residents only please unless you are willing to pay the $15 shipping.  Than…

Catherine's Mobile Stander

I've once again learned to not underestimate this girl.  At school she has been receiving therapy using this stander to help her gain strength and stamina.  We brought it home for the summer and I'm simply blown away.

I'm amazed at how proficient she is at maneuvering such a device.  She is able to roll around corners, through doorways, over carpet and more.  Catherine makes it look easy and she does so with the hand-eye coordination of a professional gamer.



However, what really amazes me is her disposition when she is in this contraption.  There are tons of books and videos addressing the power of posture, the power of physical positioning and it's influence on the mental position and mental health.  
These short (35 minute) sessions that Catherine experiences twice per day confirms the theories.  Each time she is placed in the stander her demeanor changes.  She's happy, smiles more (if that's possible) and is more outgoing.  She wheels around the house greet…

Take Up Your Cross

Thursday after Ash Wednesday

In the First Reading, Moses challenges the people, and us, to "choose life". He says, "choose life, that you and your descendants may live." This seems pretty practical. If we choose life, we and our descendants will go on. If not, well...

However, I think we need to look deeper. In fact, I would encourage you to insert a word here in the scriptures, if only mentally - "choose eternal life." For most of us, choosing life is not much of a choice in the arena of our daily lives. Most of us do not rise in the morning with the thought of I'm going to choose to live this day racing through our brains. Yet choosing eternal life must be an everyday, and in fact every moment, choice. It is an effort to make those choices day after day and minute after minute. In some degree, every choice we make throughout our day is a choice for either eternal life or eternal death - therefore choose life!

So how then do we "choo…