Sunday, April 24, 2011

Day 4

We made it to Seattle this afternoon (evening? jet lag...) after a very uneventful trip, which is a good thing if you're traveling with 2 small children. We are staying at the Ronald McDonald House and are very thankful to be here.

Catherine is at a reduction of 60% today and towards the evening it looked like she was feeling hungry. She actually hasn't eaten very much in the past couple of weeks, but on Day 3 (yesterday) she started licking food again. Today on the airplane she went back to one of her old favorites, puff cereal. She ate 8 or so. Then at supper tonight she licked and took teeny bites of a small peanut butter sandwich cracker. She did this for about 20 minutes and I would say she had about 1/8th of it. It's not a lot in quantity, but it's amazing if I look at what she was doing 3 days ago. So, we are cautiously optimistic!

Tomorrow we begin working with Karen. I will update then.

Thank you for your continued prayers!


Anonymous said...

Jocelyn Mainard passed on your name. We have an almost 6 year old son with Down syndrome who was tube fed for 3 years. We did our own weening program at home, lots of encouragement with food, lots of being hungry, and a few pounds lost, but he gained it all back when all was said and done. Mostly we just stopped day time tube feeds and fed only from bedtime to 4 am. May God give you patience and may the Holy Spirit encourage you daily in your journey. Feel free to call us for support, we prefer phone to e-mail. 503-654-5810.

In prayer,

Linda Hungerford

Anonymous said...

Hi, this is Ben the Dad of David. Have lots of options for her to try. I remember David survived on Goat milk, then Peanut Butter and now Guacamole is a major portion of his diet. If he won't eat something, we put Guacamole on it! (He doesn't really like Peanut Butter now, but with the high fat it was a blessing for him at the time.)
I remember when we finally stopped. I took the kids camping and left the pump at home. We kept the Mickey Button in just so I could give him extra water.
Blessing on your journey.
Ben Hungerford

Nicole said...

Thank you Linda & Ben for your prayers and words of encouragement!

Mother's Day Weekend.