Wednesday, May 11, 2011


Catherine had a visit with the doctor yesterday and surprisingly her weight has remained stable since we left Seattle! I expected it to drop with this illness she has and with her not eating much at all. He was happy with the progress we made in Seattle and wants to see her in a month.

Today was the first day Catherine did not have an elevated temperature, but she is still fussy and tired and not herself. It seems like she had a rash on her face and neck and then on her trunk. She seemed to eat a little more than yesterday, but we're talking about maybe 15 pieces of popcorn for the whole day. I hope this passes soon. I have to keep reminding myself that she WILL eat again. I just feel terrible that she feels bad and that it could be because she's hungry. I feel much better at night after I give her a full tube feeding and she gets some nourishment for the night.

Thanks for your prayers and support! I will update again as things change. God Bless!


Jessica RN BSN said...

You are doing amazing keep up the great work! Give her a big hug for me! I will be in Hocking Hills this weekend right near you guys!

Patience said...

If you don't mind me asking; why popcorn? I would have though it wasn't very calorie dense but maybe there's another reason?

Mother's Day Weekend.