Happy 16th Birthday Catherine Therese!!

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Although you'll never read this my sweet Catherine, I love you. 16 years ago you changed our life forever. All of your siblings have done this in their own way but you have done so in a very special way. You have made me more empathetic, compassionate, and much more prayerful. Your smile lights up the world around you and we are all blessed by it.  It's not easy living with a saint. You remind me of my weakness and limited time on this earth. You challenge me to go deeper within myself and find what the Lord is trying to teach me...usually patience. You are made in His image and likeness but He uses you so that I can see my own beauty, goodness, and shortcomings.  You struggle mightily against me with every bath, diaper change, and wardrobe change. I struggle mightily with Him against all the changes He wills in my life. You depend on me and your mom for even the simplest of things. You teach me to depend on Him for everything and not rely on my on strength. You teach me that I
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Catherine Update

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It still amazes us to look at Catherine and watch her actually eat. After having five typical kids, eating was definitely something I took for granted.

She weighed the same this week, 23 lbs. 13 oz. so we are still keeping the one tube feed around for awhile longer. Yesterday we had a couple of firsts. She ate a whole piece of toast with butter and melted cheese, usually she eats just half. This morning she ate a whole piece of peanut butter toast. Yesterday she ate red beans and rice, and she let me spoon feed her most of it! I'm guessing she was feeling sorry for me trying to finger feed it, messy! Last week she started showing slightly more interest in the cup. She actually leaned forward, mouth open, and let me put it in her mouth, but no drinking yet. Slow steady progress.

Thanks for your continued prayers and support! We pray for all of you.

Comments

Patience said…
Clearly the tube weaning program was the right move. It will be great when she can just eat and no tubes. I guess eventually they'll remove the implant?
10:39 AM
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